Archive for June, 2010

Your thoughts on the Budget

Friday, June 25th, 2010

George Osborne’s first budget was never going to be painless, and it has created huge debate amongst political commentators. But for the spinal injuries community, the announcement that all existing and future claimants of DLA will have to undergo a medical assessment undoubtedly stands out most.

This proposal is not due to come into effect until 2013, but considering that DLA is the unofficial qualifying benefit for many other services, it is one that will almost certainly affect the majority of disabled people.

So what do you think? We want to hear your thoughts and opinions on this shake-up of the benefit system. Is the coalition “targeting” disabled people, or is this just part and parcel of a “fair” system of cuts?

Please feel free to leave your comments below. (if you want to know more about posting comments, please see the “How to and FAQs” section on the right).

Brunel University SMILE study

Tuesday, June 15th, 2010

The SMILE study

Spinal Cord Injury Measure for Intermittent Catheter Users: Quality of Life Evaluation

The SMILE study at Brunel University aims to develop a measure of quality of life for people with neurological damage to their spinal cord who use intermittent self- catheters.

If you use an intermittent self-catheter as a method of bladder management you can take part in the study by completing their online questionnaire.

The research team will examine the information using a number of established methods, including some statistical analysis, to see whether the questions work together effectively and accurately to measure quality of life. This will aid future research and product development which takes the users view into account.

The survey will take about 15 minutes, and for each completed questionnaire SMILE will donate £1 to Spinal Injuries Scotland.

Please click on the following link to find out more:

https://surveys.brunel.ac.uk/smile2-1

Please note: The smile study was mailed by SIS on behalf of Brunel University. We take the protection of personal data very seriously and at no point were any contact details passed from SIS to Brunel University. Click here to read our privacy policy.

New Stem Cell Treatment Website Launched

Tuesday, June 15th, 2010

The Scottish Stem Cell Network has released a Press Release regarding information on Stem Cell Treatments. In the Press Release they have also introduced a new website which aims to provide patients, families and carers with an independent assessment of the various companies purporting to offer stem cell treatments.

Click on the image below to read the Press Release

ISSCR Press Release click through

CLICK HERE to visit the ISSCR website

SIS awards lunch 2010

Thursday, June 10th, 2010

Volunteer of the year awardOn 21st May Spinal Injuries Scotland held their awards lunch in the Radisson Blu in Glasgow. Sponsored by Digby Brown Solicitors, this annual event is held on the 3rd Friday in May to coincide with spinal injuries awareness day.

This year’s awards:

Volunteer of the year: Jim Marnell

Volunteers of the year: Santander (represented by Sarah Clark)

Supporters of the year: Ann Thomson, Jim Mair and Iris Mair

To mark Spinal Injuries Scotland’s 50th anniversary, a special award was given to the Queen Elizabeth National Spinal Injuries Unit and was received by Margaret McKillop.

Jim Marnell recieves award

Volunteer of the year Jim Marnell recieves his award from Mr David Allan

Look out for a full review of the awards lunch in the next edition of Newsline.

Wheelchair Accessible Vehicle Hire Leads to Purchase

Wednesday, June 9th, 2010

I recently used Autobility in Fife to go away for a long weekend and thought it was worth sharing my experience.

I was immediately impressed with them as their priority was the safety & comfort of the wheelchair passenger. We got everything sorted out with minimum hassle and off we went, only to come home the following day as I got a mark on my skin! (This was of course nothing to do with the hire vehicle). When my friend took the van back, Andy & Lorraine (the owners) of Autobility said we could have a refund or to just let them know when we were going away again and they would look at letting me have the vehicle for the same hire period.

I had a hire car on one occasion before my accident and had to return it early. I was then informed I couldn’t get any refund as the car was booked for a certain period of time and it wasn’t their fault I returned early. So I was pleasantly surprised when Andy & Lorraine acted the way they did.

I did get a vehicle for a second trip away which I have to add was a success!

Shortly after this, the van that I had owned for a number of years became un-useable.  I contacted Autobility about buying a second hand vehicle from them and they couldn’t have been more helpful. They handled everything in a professional manner, including all the paperwork and gave help and advice about insurance for the vehicle. There were some things on the van that had to be changed to make it more suitable for me which was done quickly and proficiently. A full demonstration of the vehicle was carried out at a suitable time for me and family members that would be driving it.  I was included in all discussions about the vehicle from the outset right down to delivery.

After having my new, well pre-owned vehicle I received follow up calls to make sure we were managing and happy with everything.

All things considered, I would highly recommend Autobility to anyone for a hire vehicle or a purchase.

I have passed their details on to my community occupational therapists and physiotherapists and I have left leaflets in the Spinal Unit as I would recommend this company to others.

There is a link to Autobility HERE on the SIS website or click on the banner below for a direct link to the Autobility website.

Autobility click through

500mile handcycle completed!

Friday, June 4th, 2010

Well, we finally made it. It was a fantastic experience and a great challenge.

Ayr beach front, Day 1

I’d personally like to say thanks to all those that sponsored us and sent messages of support. I’d also like to thank all our corporate sponsors, without their support we simply would not have managed this.

Thanks also go to the staff, volunteers and patients at the three spinal units we visited. We were given a fantastic reception and it was great to talk to the patients and staff about what we were trying to achieve. Hopefully we’ve inspired a few people to try handcycling or other sports.

It wasn't all sunshine!

A special thanks also has to go to our back up driver Kevin Toogood, who’s tireless effort all week made life for Kenny and I much easier and kept us on the right roads…most of the time!

The team in Dublin with Hollister's representatives Day 4

I’ll be posting a fuller review of the week with more info, photos and plenty of video footage, just as soon as I manage to get everything edited. We’ll also have a write up in the next edition of Newlsine so keep a look out for it.

Alan

You can still sponsor us on just giving here!

Recognition project for Sir Ludwig Guttmann

Tuesday, June 1st, 2010

Professor Sir Ludwig Guttman (1899-1980) was the founder of modern spinal injury treatment and the Paralympic Games. A long overdue recognition and celebration project of the life and work of this remarkable man is now under way.

Ludwig Guttmann

In 1944 Professor Sir Ludwig Guttmann revolutionised the treatment, and life expectancy of those suffering Spinal Cord Injury with the opening of the National Spinal Injuries Centre at Stoke Mandeville.

In 1948 to coincide with the Olympic Games taking place in London that year, he set up what would become an annual sports competition for the paralysed. Initially including only those with spinal injuries from the UK, this competition quickly grew into an international event for all disabilities.

In 1960 the competition became truly international when 400 disabled athletes from across the world took part in the Olympic Stadium in Rome to coincide with that year’s Olympic Games. The Paralympic Games, as they are now known, have become the second largest sporting event in the world. It’s hard to believe they started as an archery competition in Aylesbury!

The “Poppa” Guttmann Recognition and Celebration Project is planning to create a permanent tribute to the life and legacy of this remarkable man including the creation of a life-size bronze statue to be erected outside the NSIC at Stoke Mandeville. To find out more about this and the other projects please visit their website by clicking here.

Related internet links:

The “Poppa” Guttmann recognition & celebration project

The National Spinal Injuries Centre, Aylesbury

Paralympics GB